Tag Archives: surprise

Mobility Update: My Guide Session 10

After a lovely fortnight up north visiting Kieran and family, which I’ll write about separately in my next post, I was eager to get back to my My Guide routine, especially with all the positive news I’ve had lately… In fact, things couldn’t be more positive right now and anyone who knows me well will know it takes a lot for me to have that outlook!

Firstly, I finally have my Victor Reader Trek! HumanWare rang me on the Monday of mine and Kieran’s holiday to let me know that the units were finally in stock so did I want to complete my purchase so they could ship mine out to me? What a silly question! Ive only been waiting months… But anyway, the purchase was made and the man on the phone said the package would be shipped out the following day using DPD. A little bit of me was sad it was arriving when it was considering I still had a whole week left up north. But that was quickly forgotten whilst enjoying our holiday. Today being my first My Guide session provided a perfect opportunity to see what the Trek was like. While I was with Kieran, he painstakingly copied all the routes and landmarks I had stored on my Breeze onto my computer so that I could copy them onto the Trek’s SD card as soon as I got home and them import them onto the Trek to be used while out and about. More about the Trek later.

The other excellent news I received came in the form of a phone call from the GDMI who assessed me in october following the scheduled case review where my progress was discussed. The southampton Guide Dogs team have decided I’m ready for further assessment! I couldn’t be a fraction happier about this if I tried, unless it replaced the nervousness and worry I have about the whole thing. The GDMI seemed full of praise and more than happy to answer my multiple questions. The whole thing felt incredibly positive, not at all like that assessment in october. In fact, it felt like I was talking to a completely different woman to the one who assessed me. I had to keep reminding myself that she was actually the same person. She seemed very pleased with the progress I’ve been making with routes, explaining that ideally a Guide Dog would have one at least 45-minute working period and another shorter, 20-minute-ish working walk throughout the day. I brought up the point that surely all Guide Dogs partnerships are different and not every single day can every single Guide Dog owner get their dog out for this recommended period of work. She didn’t seem to mind at all that I was questioning or debating with her; in fact, she seemed quite keen to have the conversation. We also discussed my worry of the routes to free run areas being pointless if I’m matched with a dog who I can’t free run by myself. The way I’m looking at it is I can always work the dog to the free run area and have someone meet me there to supervise the free run itself. The only definite issue would be if I had a dog who refused to continue on with a route that included the free run area without going to the free run space. Obviously this would be problematic because you wouldn’t be able to use that route and get to your desired destination without allowing your dog some off-lead time. This really wouldn’t be practical if you were in a rush or had a deadline to be somewhere and the only option was to use a route that contained a free run area. The conversation definitely gave me a lot to think about. The GDMI said that the purpose of the further assessment is for the team and I to decide whether a Guide Dog is definitely the best mobility aid for me. At this point, I gently cut in and assured her that I’m not going to change my mind. I wouldn’t have persevered this long or tried learning all these new routes if I wasn’t 100% certain I wanted a Guide Dog and that it would be an enhancement to my life. It really, really would. The GDMI explained that the further assessment would be a day at a centre actually working with guide dogs in all capacities. I’m assuming this means on harness as well as some of the more domestic things like grooming and play time. It sounds a lot like the assessment I went for in December 2011, when I was told that then wasn’t the right time for me to have a dog considering I only left the house to go to school and with my parents and was planning to go to residential college in the next 18 months. My aim this time is to not be so nervous and do everything they instruct me to with 110% enthusiasm. Talking in that singsong voice makes me embarrassed and self-conscious but I’m going to do my best to put that out of my mind for the assessment. I’m going to have to do my best with tone and pitch of voice if I want to be a guide dog owner so might as well give it my best shot at the assessment even if I do feel ridiculous. Yesterday, a letter arrived in the post containing the details for the assessment. It’s on Tuesday 13th March from 10am to 3pm in a part of southampton I’ve never been to. Dad’s agreed to take the day off to transport me there and then pick me up again when its over. Receiving the letter made me even more nervous than I already was about the prospect of attending the assessment. 13 March really doesn’t seem far away and I’m terrified I still won’t have done enough or be chirpy enough in my singsong voice or do something wrong that makes them think a guide dog wouldn’t be right for me. All I can do is my absolute best and that’s what I’ll give so if that isn’t enough there won’t have been anything else I could have done. As far as I’m aware, the two outcomes of this assessment are “yes, we think a guide dog is for you and think you’re ready to go on the list” or “no, we don’t think a guide dog is for you’. I’m hoping if it isn’t the first answer I might get “we think a dog is right for you but not quite yet so keep working on your routes and we’ll reassess you when you know them all independently”. I’m really hoping that my progress so far and the promise that I’ll continue learning routes if they put me on the list and while I wait will be enough for them. If I get a flat out “no we don’t think it’s right for you”, I’m told I can appeal if I feel I have grounds to appeal on. My Guide Dogs gurus, who I go to for all guide dog related advice, have said I would have grounds to appeal on if it was a direct no. This is reassuring because I don’t intend to take no for an answer.

Now for today’s session. As usual, Jenny arrived at 9:30 for our walk. With the Trek all ready to go, we set off. To begin with, I didn’t feel like I was doing a very good job at recalling the route. But as we got into it, things seemed to improve. The Trek wasn’t doing a great job at following the route I’d recorded on my Breeze so I cancelled it and walked without it, with Jenny assisting wherever necessary. We completed the slight adjustment we’d made to the route, crossing a road instead of walking along the path that has a huge drop to the left. It felt a lot better not even having to be wary of the drop and the crossing isn’t a difficult one at all. The rest of the route went relatively well. I noticed that the landmarks that had been copied from the Breeze to the Trek weren’t particularly useful. They weren’t being announced in the correct positions. Eventually, I decided I would just re-record the route and all the landmarks fresh so that it was more useful.

We stopped at Coffee Mac’s for our usual break. Jenny had her coffee and i had apple juice with a slice of banana cake. It wasn’t really a reward for anything – I just fancied a slice after how delicious it had been last time. Plus, I figured why not. If I have to say it was a treat, it was a treat for the good news about the further assessment. Again, the cake was lovely and I enjoyed the apple juice much more than I would have a hot chocolate. Afterwards, we popped into say hello to Dad. Then, we headed home, starting to re-record the reverse route from Coffee Mac’s. I noticed that some of the old landmarks were appearing but not consistently. I felt much more comfortable re-recording them and decided I’d start deleting some of the old landmarks later on. I felt that the reverse route went quite well and i was remembering much more of it. Jenny seemed pretty positive about how things were progressing, too, which was nice because its always good to have her support and know how things are looking from another perspective.

We’ve agreed to meet next Friday for our next session. I’m hoping that once we’ve re-recorded the route on the Trek, I’ll really be getting the hang of the route and maybe be getting to a point where I can do it without any input from Jenny, therefore independently. I’m also hoping that Dad and I will be able to go out next Wednesday and continue learning the route to my sister’s school. I’m hoping to pick it up quickly and then merge it into learning the route to my grandparents house. I think both will be amazingly useful routes, not only for their length but for the fact that I already go to my grandparents once a week on Wednesdays for tea, opening up an excellent opportunity to walk there independently. As for my sister, well shes only in her second year at that school so I still have plenty of time to use that route legitimately. To be fair, though, its just a good place to be able to walk to, especially as it extends to my grandparents house.

Overall, I think our 10th session went pretty well considering I’ve been away for two weeks and the new addition of the Trek and the little complications that brought. I think next week will be even better and I have a lot to look forward to with the upcoming further assessment with Guide Dogs. All I have to do is try not to get too nervous and worried by the day because I know what I’m like… I’ll be imagining all the worst outcomes and then on the day just constantly be thinking that its going to be a bad outcome when there’s a good chance it’ll be a good one. Keeping everything crossed that I’ll get my dream answer of being put on the waiting list. All I can do to get that answer is try my best. Try, I will.

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Mobility Update 27 July: Guide Dogs mobility assessment

Last week, I received a call back from one of Guide Dogs’ mobility officers to ask when I was available for my Guide Dogs mobility assessment. We agreed on this Tuesday, July 25th, at 10am. I was nervous even on the phone. The instructor who was coming out to see me was the lady who had dealt with my case before I contacted Seeing Dogs and who, at that time, said she felt then wasn’t the right time for me to have a dog and that I needed a lot of route training before I’d be ready. Then, we agreed on a My Guide partnership, whereby they’d match a volunteer to me to help out with whatever I needed, which in my case was route training. Unfortunately, before I was suitably matched to a My Guide volunteer, John from Seeing Dogs had told me that Zena was a successful match. Of course, as someone who has always desperately longed for a guide dog, I was hardly going to take the opportunity of more cane training over the offer of a dog. However, as I soon discovered on Tuesday, I was wrong to be worried about seeing this particular instructor again.
I knew I’d have to show her one of my routes and I hoped, even though she’s seen it once before, she’d be happy with the simple route to my local Co-op. Luckily, a lot of discussing was done before we set out for the actual mobility part of the assessment. Mostly, she wanted to know what routes I currently have and use, whether they’d improved since we last met and what had happened with Seeing Dogs. Before Tuesday, I’d had advice from everyone about what I needed to say in order to prove that I have enough of a workload now to need a dog and that having a dog for me works so much better than a long cane. I explained all about Zena and what had happened regarding Seeing Dogs. I told her that I felt there needed to be more support and that for me Zena was totally the wrong match. I tried not to linger over all this for too long, instead emphasising how often I used to take Zena out and all the places I could go to with her. I made it quite clear how much more confident I felt with a dog in place of a long cane and how I felt able to get out of the house whenever I wanted to. She knew, from interviewing me last time I applied for a guide dog, that this was all a massive improvement on where I was 18 months ago.
Even before we went out for the long cane demonstration, she told me that she would be putting me forward for a guide dog assessment. This is the next step towards actually getting a dog. An assessor comes out to your house and discusses everything to do with owning a guide dog as well as making you walk with the handle of a harness, to judge your reactions and posture I think. This is when you can specify whether you’d prefer a particular breed, colour or gender of dog. As I commented when she was explaining all this, I’m not going to be disclosing any preferences. As long as the dog is matched appropriately and correctly, I’m not bothered if its female or male, Labrador or Shepherd, or golden or black. As long as our partnership is based on professional judgement, it doesn’t matter what kind of dog I get.
I was really surprised to discover that the long cane part of the assessment went really well. The instructor said that all aspects of my mobility had improved massively and when we arrived back at mine, she said that this was what they needed, that she hoped I understood now why they had to say no last time. If she’d said no tis time too, I don’t think I’d ever had agreed with her. But I do; I get it completely. I needed more routes. I needed more confidence. And it’s John and Zena I have to thank for that. I don’t think I’d ever have accomplished it so well with a cane. The assurance I have that a Guide Dog is the right mobility aid for me has made me determined to have one; and I’d never have known that for sure without the 5 months I spent with Zena.
So the next step from here is the Guide Dog assessment. The instructor told me to wait 8 weeks to hear from someone. If time stretched on longer than 8 weeks, I am to contact them immediately to hurry them up. If I am successful at the Guide Dog assessment, I’ll be put on the waiting list for a dog. As a side thought, I asked if I’ll be able to have further help to learn routes while I’m on the waiting list and the instructor reassured me by saying I could. Although I’m happy with how much progress I’ve made with routes in the last year, I’d still like to add more to my growing list. The more routes I have, the more I have to keep a dog busy. It has to be said, though, that I couldn’t have hoped for more from this assessment. I was absolutely terrified about it before it happened and afterwards I couldn’t have been happier but more shocked about the outcome. There isn’t a better option than what i’ve come out of it with.
My homework, while I wait for my Guide Dog assessment, is to do the routes to the leisure centre and the library independently with my cane. I’ve never done this before so it’s quite a challenge to be presented with. I’ll do it, though, at some point. I’ve asked my dad to do the leisure centre route with me so that i can log it onto the Trekker Breeze before approaching it alone. It’s not that I don’t think I can do it, it’s just that having the Breeze as backup is a big reassurance. Anyway, as I have two months to get it done, I think it’s ok to take an extra precaution with it.
So I’m on my way towards getting my very own Guide Dog. One more assessment, which everyone seems quite confident I’ll pass, then hopefully a match, then training and then hopefully freedom, even better freedom than what I had with Zena. I’ve been warned that the Southampton waiting list for a dog is currently 18 months so it could be quite sometime before i get that freedom. It’ll be worth it when I do though. Next stop guide dog assessment.
I just want to thank everyone who supported me in the lead up to Tuesday and who greeted my amazement at the outcome with enthusiasm and positivity. I wouldn’t be in this position I am,having the confidence and determination to continue with the guide dogs application process if it wasn’t for your support. Lets hope that I can get through the Guide Dog assessment successfully and be put on the waiting list. I don’t think I’ll believe it’s true if I’m that lucky. But I’m hopeful, really hopeful that this time everything is going to work out in my favour. I mean, if Tuesday is anything to go by, I really am going to be very lucky.