Monthly Archives: February 2018

“Don’t tell my mother I’m eating salad, she might make me”

In the later part of last year, Kieran booked a holiday for the two of us, our first holiday together as a couple. It was a 5 night stay at one of the previously known as Vision Hotels, well-known amongst the blind community as a good place to go to get blindy friendly service and to have a nice time. Our package included the five nights in a double room, three-course meals each evening and breakfast every morning. On top of that, it included 2 trips; neither of us really knew what these trips entailed, but if they were included in the price why not. It cost £199 each for the package, which we agreed was a good deal for what it included. Kieran had heard many good reviews about the Vision Hotels whereas the ones I’d heard weren’t so glowing. So, as usual, Kieran was the optimist and I the pessimist, agreeing that if the holiday was a disaster we’d never speak of it again.

In preparation for our little break away, on Wednesday 7th February, for the first time this year I boarded a plane that took me to Newcastle, to Kieran and family for the first time in 2 months. Distance is a pain and other priorities don’t make the situation easier. With Kieran working and me trying to concentrate on uni work and my My Guide routes, it leaves not much time for us. Add into that that I’ve just become an aunt, to the most beautiful baby girl who lives in Stoke-On-Trent with her parents, big sister and brother, and its quite obvious I don’t have tons of time at my disposal. But I do my best. The flight this time wasn’t a particularly pleasant one. There was quite a bit of turbulence and for some reason we started our descent really early, over Birmingham, so it felt like we were falling for quite a while, a feeling I’m really not a fan of. The landing was pretty rough, too. We seemed to be hurtling towards the runway a lot faster than we should have been so when we hit the ground the pilot had to slam the brakes on a lot harder than usual. Soon enough, though, I was with Kieran and John and we were in the car on our way to Blyth. Comment: I must add here that I’ve never known anyone flick through tracks on an album so fast! In the time it took John to drive us from the airport to their house, which is considerably faster than most people, John skipped through all but one song on six discs of music! It was quite crazy. For once, my flight to Newcastle wasn’t accompanied by a weather warning, usually, there’s some kind of concern in place for my flight.

Wen we arrived, Lesley almost had dinner ready. We had a lovely lasagne with garlic bread. We watched an episode of The Chase before heading upstairs to bed because John and Lesley wanted to watch Silent Witness.

The following day was a lazy one. Lesley worked from home but Kieran went to work early, being picked up by a colleague who lives near to them. While Lesley worked in the dining room, I caught up on episodes of East Enders and Holby City on IPlayer on my IPad. Afterwards, I changed to Netflix and continued where I’d left off at home watching Benidorm. I’d started watching it not realising that a brand new series is starting on ITV next week, so quite a timely opportunity to start binge watching all the way from the very first episode all the way to the most recent. All 9 series! Really, I should have been cracking on with uni work, but I’d bought my big main laptop with me for Kieran to fix as once again I’d done something I had no idea what to break it. This meant that I didn’t want to risk packing my little 1kg laptop along with my hefty 2kg Toshiba and IPad. I thought it might be pushing the weight boundaries just a bit with all my clothes and other bits and pieces. This meant that although my Toshiba was present, it was currently useless and studying on my IPad was something I was hesitant to try out. For lunch, Lesley made me scrambled egg on toast, which was very nice. Afterwards, I decided I better try and do some uni work so tried doing it on my Ipad, using the OU Anywhere app and Safari. It didn’t go particularly well. I don’t know if it was just my stupidity where technology is concerned or if the website just is difficult on iOS.

Later, we had Kiev and Dauphinois potatoes, something I hadn’t tried before. They were very nice. Again, we watched The Chase and then went upstairs because John and Lesley were putting Silent Witness on. We watched Russell Howard’s Netflix special, which was very funny and posed possible titles for this post, which Ive since forgotten…

Friday was a nice day because it was Lesley’s day off and due to building work near his office Kieran had decided to work from home. This meant I had plenty of company. I watched Benidorm on Netflix on my Ipad for most of the day, feeling that trying to do more uni work on it when I’d found it so difficult was pointless. Rebecca came in before lunchtime so I gave her the moving in card and voucher I’d bought for her, which had arrived in a big parcel of essentials that morning sent by Mum. She and Darren were getting everything ready for moving into their first house the following week. Later on, Kieran had a sausage roll each which Rebecca had bought in for us. After he’d finished working, Kieran set about trying to fix his Dad’s computer. John was having problems syncing his iPod to his iTunes. Meanwhile, I got a call from an unknown number. Soon after rejecting the call, I suddenly realised it could have been Guide Dogs calling back about the case review they’d had concerning whether I could move forward with my application for a dog. I sent the number to Imi,who confirmed it was a Guide Dogs number but said it was from a fundraising branch in Gloucester. Then, not long later, my parents, who were on their way to Stoke to meet the baby, rang to say they’d had a call from the GDMI who’d assessed me in october asking for my contact details. Eventually, I convinced myself to ring the number back and it was indeed the GDMI with some very good news for me. The southampton team have agreed I’m ready for a further assessment to determine whether we all agree a Guide Dog is the most appropriate mobility aid for me. After talking to her for quite a while about everything I could think to mention, I rang Imi, who’d been waiting for the outcome, and we chatted for ages, her confirming my overall thoughts that this was very good news. By the time I was off the phone to Imi, Kieran had joined me in his room, doing everything he could think of to fix the iPod issue. We listened to Ed Sheeran’s album Plus on vinyl before heading out for a date night. Lesley and John drove us to Sambuca’s, my favourite place in Blyth, before going on to The Commissioners for dinner themselves. I had potato skins for a starter. They were quite nice but not like the potato skins I’m used to, the ones covered in melted cheese and bacon. Kieran had chilli prawns, which he enjoyed, and then a meat feast pizza with extra chilis. Of course, I had my favourite, the tuna and garlic pizza, and loved it. Kieran got a portion of chips to share but I wasn’t that keen on them as they were just like my potato skins. Lesley and John picked us up after we were done and we went back to theirs and watched Cats Does Count Down. Again, we went upstairs because they were watching more Silent Witness. We chose Frankie Boyle’s Netflix special to watch but fell asleep partway through it.

On Saturday, we had a cooked breakfast and watched some Judge Judy when we finally got up. Then, we went back upstairs so Kieran could start working through fixing my laptop. I did my packing for our holiday. Later, we went downstairs for dinner, which was Spanish chicken with jacket potato. We watched some Gavin and Stacey they were showing on Gold and then an episode of The Chase, Harry Hill’s Tea Time and Family Guy.

On Sunday, we got up early because Lesley was driving us to the Lake District for our holiday. John was supposed to be joining us but he was going to the Newcastle match later. On our way to the hotel, Lesley stopped to get Kieran and I McDonald’s. Kieran had a bacon McMuffin meal and I had a sausage McMuffin meal. This meant we both got hash browns, which are of course the best part of any mcdonalds breakfast. A little later, Lesley stopped to get herself a cup of tea. When we reached the Windermere Manor Hotel, somewhere after 11am, we were still far too early to check in so sat in the drawing room for a while. Just as Lesley was going to leave, the receptionist came and told us we could use our room now. A little while after lesley had left, a lady came up to give us a little tour of the hotel. We listened to the Newcastle and then Liverpool matches on my Ipad for the rest of the afternoon. At around 7 o’clock, we went down for dinner. We we read the menu and asked for our meal choices before being shown to a table. Kieran chose fish cake for starter, roast turkey with all the trimmings for main course and cinnamon and apple crumble with custard for pudding. I had the same starter and pudding but chose roast ham with a honey mustard sauce and all the trimmings for my main. We were offered a bread roll and butter and a glass of water before our meal, which was delicious. Although I’d been certain our evening meal was included in the package price, we hadn’t realised it’d be a three course meal. After we’d finished our puddings, we were then offered tea or coffee to finish our meal with. Kieran had coffee and I tea and we got a little chocolate mint on our saucers. Feeling very full, we went back up to our room and watched Meet The parents.

On Monday, we got up fairly early to be down for breakfast, which was from 8 until 10. No late lie ins for us… breakfast consisted of both cold and hot food with fruit juice and hot drinks. Neither of us opted for the cereal but had the cooked breakfast which consisted of bacon, sausage, hash brown, beans, mushrooms and your choice of egg. Kieran doesn’t like egg so didn’t have any but I had scrambled. The breakfast was very nice. When we were finished, we went back upstairs and watched Jeremy Kyle on ITV plus 1. Then we watched Meet the Fockers and Little Fockers before starting to read Kevin Bridges’ autobiography We Need To Talk About, which I’d read before but Kieran hadn’t. During the book, my phone rang and it was someone from HumanWare to tell me that the shipment of Victor Reader Trek units had come in so the one I’d put my name to was ready to despatch. After I’d made payment and finished the call, we ontinued listening to the audiobook until 5 o’clock when Kieran put the TV on and we watched The Chase, adverts and all!

At 6:30, we went down for dinner. Again, the menu was read to us and we gave our preferences before being guided to our table. That night, Kieran had apple and parsnip soup, chicken filet in a bacon and sweet corn butter with new potatoes, creamy potatoes, leak and cauliflower and ice cream for afters. I had cod goujons, the same main meal and then a warm waffle with chocolate sauce, cream and ice cream. I really enjoyed it all but especially the waffle. Afterwards, Kieran had a cappuccino and I tried a latte. I’m not a very big coffee fan because of the bitter taste but thought I might like a latte because its so milky. I did, after I’d put at least three sugars in! We decided to go to the bar for a drink afterwards. Kieran had a pint of beer and I a coke. When we were finished, we went up to our room and rang our mums. Then, Kieran watched Good Fellas and i went to sleep.

On Tuesday, we had the first of our two trips out so went down for breakfast earlier so that we could be in the reception area to meet the others at 9:30. Kieran had the same as the day before for breakfast, a full English minus the egg. I opted for the cereal first, having a small bowl of cornflakes. Then, I had a hash brown, scrambled egg, beans and mushrooms. When we were ready, we met with the rest of the group and boarded the mini bus. Kieran and I had a sighted guide each. We went to a little village called Grasmere. Kieran had been there before. We went for a little walk, on which I got soaked, and then went for a coffee in the garden centre’s cafe. Kieran and his guide went to the gingerbread shop Grasmere has and then we all climbed soggy back onto the bus and headed back to the hotel. When we got back, I needed to thaw out and warm up so snuggled in bed. We listened to mor of Kevin Bridges book for the rest of the afternoon. As a pre-valentines gift, Kieran had bought us two gingerbread hearts and they were so tasty. He’d also bought a tin of gingerbread to take home. We watched The Chase again before going downstairs for dinner. The routine applied again: choose our meal options from the menu which was read to us before being guided to our table. Tonight, Kieran had onion and potato soup, a beef and cabbage dish, fruit cocktail (fruit salad) and a coffee. I had cheese and onion quiche, a breaded fish dish, pancakes with sauce and a cup of tea. After, we went to the bar again and Kieran had a pint of beer and I had a pint of Strongbow, reminding myself that I don’t even like it… we went back up to our room and watched Kevin Bridges first comedy DVD A Story So Far.

On Wednesday, it was our second trip. We had breakfast the same and then met the group again at 9:30. This time, we went to a little village called Cartmel, which is famous for sticky toffee pudding. We went on a long walk around the village first before going to the famous sticky toffee pudding shop. Kieran bought a sticky toffee pudding and some sticky toffee sauce to take home and I bought a slab of homemade vanilla fudge for Mum and a smaller piece and a little bag of toffee for myself. Again, we went and sat in a coffee shop and then headed back to the mini bus to go back to the hotel. Again, I needed to thaw and dry out when we got back. We listened to more of Kevin Bridges’ book and then watched The Chase before going down for dinner. We both had mini spring rolls, pork stroganoff and chocolate fudge cake with chocolate sauce and ice cream. Kieran had a coffee and I had a cup of tea. The spring rolls were definitely my favourite starter of the week and the fudge cake was only just beaten to the top spot by the waffle because it was just that nice. In our room, I had a headache and we watched the Pordeau vs Liverpool match where Liverpool won 5-0. Then, we watched the news and Kieran watched some Family Guy.

On Thursday, we were able to have a bit of a lie in because we weren’t going anywhere. We went down for breakfast later than usual. Today, I had cornflakes, a full English, apple juice and a cup of tea. Kieran had his usual. Back in our room, we listened, and Kieran played along, to Pop Master before reading the remaining chapters of Kevin Bridges autobiography. In the afternoon, we watched some Jeremy Kyle on ITV2 before turning back for The Chase. Our final big meal of the week was nice. I had huge breaded mushrooms and kieran had chicken and potato soup for starters. Then we both chose the chicken and mushroom pie with new potatoes, dauphinois potatoes and lots of veg for our main and ice cream for pudding. We both enjoyed our meals but were a bit disappointed with the pie because, as Kieran remarked, it was “just chicken and mushrooms with a pastry hat”. It would have been nice if it had been a whole pie rather than just the pastry resting on the filling. In the end, we decided not to go for a drink in the bar, instead going up to our room. Kieran fancied a bath so ran one, having to spend a bit of time getting the water to come out right because it kept switching from the taps to the shower head. While Kieran enjoyed the bath, I started packing some of my stuff up ready for us to leave in the morning. Once Kieran was done, we decided on Chris Ramsey’s stand up show Is That Chris Ramsey to watch. It was hilarious.

Friday of course brought the end of our holiday. But despite my uncertainty we’d had a great time. We had breakfast and then went upstairs and packed. We listened to Pop Master again before gathering all our stuff and heading downstairs. We checked out and then went and sat to wait for Lesley, who arrived 5 minutes later. After she’d had a cup of tea, we set off. On our way, we stopped at a place called Brocksbushes farm cafe for lunch. Kieran and I had hunters chicken melt panini and quiche and a side of potato wedges. When we got back to theirs, thankfully the water was back on. John had had to call someone he knew from the Northumberland water board though. We went to see Rebecca and Darren’s new house but got there to find they weren’t in so just went home again. We watched two episodes of a funny Scottish show called Two Doors Down. Kieran ordered everyone takeaway: he had a tandoori special kebab which included tandoori chicken and donner meat with chips and I had donner meat and chips with a can of Doctor pepper. We watched two episodes of The Last Leg before going to bed.

On Saturday morning we had a really long lie in before going downstairs and having tea and toast for breakfast. Later, we went back upstairs and Kieran started fixing my laptop. We had Family Guy on the TV. We had dinner of chicken and chips with warm crusty bread and watched an episode of The Chase and then Ted 2.

Again on Sunday we had a really long lie in. I had a cup of tea, toast and a banana for breakfast. I started reading the Victor Reader Trek user guide properly on my laptop. Later on, we had dinner of mince and dumplings with mash and veg. We watched the Rochdale vs Tottenham FA cup match which ended 2-2. Kieran and John had some of the sticky toffee pudding and sauce Kieran had bought in Cartmel. Afterwards, we went upstairs and listened to Magic Chilled on Alexa.

Monday meant that everyone was back to work and because Kieran had fixed my laptop I was able to start catching up with the uni work I needed to do. I also caught up on the episodes of East Enders and Holby I’d missed, turning to Netflix and Benidorm afterwards. I had ham sandwiches for lunch. When they were on their way home, Kieran text me to tell me to get ready because we were going round to see Rebecca and Darren in their new house. We didn’t stay long, just for a chat and a look around their house, which they seem pretty happy with. When we got back, we went upstairs and watched Judge Judy and The Big Bang Theory. Our dinner was cornbeef and sliced potatoes. We watched some The Chase and then the Manchester City vs Wigan match which Wigan won 1-0. Kieran and I went upstairs and he sorted out my routes and landmarks on my Trekker Breeze so that I had a copy of them ready to put on my Victor Reader Trek once I got home.

Tuesday was my last day up north but it was a little different to most of my last days so far. Kieran was at work so we didn’t have a lie in or have a lazy day watching TV. Instead, I packed up all my stuff, did a little bit of uni work and watched more Benidorm. When Kieran came in, we went upstairs and had a cuddle. When it was ready, we went downstairs for dinner of sausage, chips and beans and watched an episode of Two Doors Down. Then, it was time to leave for the airport. At the airport, it took ages for assistance to arrive, meaning I got a few more minutes with Kieran. When they did come, we had to rush away because people were already boarding the flight. As usual, the goodbye was the worst part. As I’m yet to meet my new niece and need to work hard on my studies and learning my routes before this next assessment with Guide Dogs, I’m not sure when Kieran and I will see each other next. He’s working, of course, so can’t take much time off. Hopefully, it will be sometime soon. The distance is definitely the worst part of our relationship.

All the thanks as always to Lesley and John for having me to stay, putting up with me and looking after me. Special thanks to Lesley for driving us to Windermere and then coming all the way back to pick us up on the Friday. We wouldn’t have been able to have our little holiday without it so I’m very grateful. Hope I wasn’t too much of a pain and hope I can come back soon.

Of course, to Kieran, lots of love as always. Thanks for suggesting we go on holiday together and sticking with it even when I was being my usual miserable and cynical self. You were right. We had a great time and I loved that we managed to have that extra time together. It isn’t often any more that we get that long together and not often at all that we get any time just us so it was definitely worthwhile. Thank you for fixing all my stuff. I’m sorry I’m so useless with technology. Don’t know where I’d be without you. Don’t ever think i take it for granted because I never have. For the heart-shaped gingerbread and Rubius the monkey, I love them both. Not as much as you, though, of course. I hope it isn’t too long until we see each other again. I’ll try my best to be back up there as soon as I can, as soon as your poor parents are happy to have me… love you now and always.

Advertisements

Mobility Update: My Guide Session 10

After a lovely fortnight up north visiting Kieran and family, which I’ll write about separately in my next post, I was eager to get back to my My Guide routine, especially with all the positive news I’ve had lately… In fact, things couldn’t be more positive right now and anyone who knows me well will know it takes a lot for me to have that outlook!

Firstly, I finally have my Victor Reader Trek! HumanWare rang me on the Monday of mine and Kieran’s holiday to let me know that the units were finally in stock so did I want to complete my purchase so they could ship mine out to me? What a silly question! Ive only been waiting months… But anyway, the purchase was made and the man on the phone said the package would be shipped out the following day using DPD. A little bit of me was sad it was arriving when it was considering I still had a whole week left up north. But that was quickly forgotten whilst enjoying our holiday. Today being my first My Guide session provided a perfect opportunity to see what the Trek was like. While I was with Kieran, he painstakingly copied all the routes and landmarks I had stored on my Breeze onto my computer so that I could copy them onto the Trek’s SD card as soon as I got home and them import them onto the Trek to be used while out and about. More about the Trek later.

The other excellent news I received came in the form of a phone call from the GDMI who assessed me in october following the scheduled case review where my progress was discussed. The southampton Guide Dogs team have decided I’m ready for further assessment! I couldn’t be a fraction happier about this if I tried, unless it replaced the nervousness and worry I have about the whole thing. The GDMI seemed full of praise and more than happy to answer my multiple questions. The whole thing felt incredibly positive, not at all like that assessment in october. In fact, it felt like I was talking to a completely different woman to the one who assessed me. I had to keep reminding myself that she was actually the same person. She seemed very pleased with the progress I’ve been making with routes, explaining that ideally a Guide Dog would have one at least 45-minute working period and another shorter, 20-minute-ish working walk throughout the day. I brought up the point that surely all Guide Dogs partnerships are different and not every single day can every single Guide Dog owner get their dog out for this recommended period of work. She didn’t seem to mind at all that I was questioning or debating with her; in fact, she seemed quite keen to have the conversation. We also discussed my worry of the routes to free run areas being pointless if I’m matched with a dog who I can’t free run by myself. The way I’m looking at it is I can always work the dog to the free run area and have someone meet me there to supervise the free run itself. The only definite issue would be if I had a dog who refused to continue on with a route that included the free run area without going to the free run space. Obviously this would be problematic because you wouldn’t be able to use that route and get to your desired destination without allowing your dog some off-lead time. This really wouldn’t be practical if you were in a rush or had a deadline to be somewhere and the only option was to use a route that contained a free run area. The conversation definitely gave me a lot to think about. The GDMI said that the purpose of the further assessment is for the team and I to decide whether a Guide Dog is definitely the best mobility aid for me. At this point, I gently cut in and assured her that I’m not going to change my mind. I wouldn’t have persevered this long or tried learning all these new routes if I wasn’t 100% certain I wanted a Guide Dog and that it would be an enhancement to my life. It really, really would. The GDMI explained that the further assessment would be a day at a centre actually working with guide dogs in all capacities. I’m assuming this means on harness as well as some of the more domestic things like grooming and play time. It sounds a lot like the assessment I went for in December 2011, when I was told that then wasn’t the right time for me to have a dog considering I only left the house to go to school and with my parents and was planning to go to residential college in the next 18 months. My aim this time is to not be so nervous and do everything they instruct me to with 110% enthusiasm. Talking in that singsong voice makes me embarrassed and self-conscious but I’m going to do my best to put that out of my mind for the assessment. I’m going to have to do my best with tone and pitch of voice if I want to be a guide dog owner so might as well give it my best shot at the assessment even if I do feel ridiculous. Yesterday, a letter arrived in the post containing the details for the assessment. It’s on Tuesday 13th March from 10am to 3pm in a part of southampton I’ve never been to. Dad’s agreed to take the day off to transport me there and then pick me up again when its over. Receiving the letter made me even more nervous than I already was about the prospect of attending the assessment. 13 March really doesn’t seem far away and I’m terrified I still won’t have done enough or be chirpy enough in my singsong voice or do something wrong that makes them think a guide dog wouldn’t be right for me. All I can do is my absolute best and that’s what I’ll give so if that isn’t enough there won’t have been anything else I could have done. As far as I’m aware, the two outcomes of this assessment are “yes, we think a guide dog is for you and think you’re ready to go on the list” or “no, we don’t think a guide dog is for you’. I’m hoping if it isn’t the first answer I might get “we think a dog is right for you but not quite yet so keep working on your routes and we’ll reassess you when you know them all independently”. I’m really hoping that my progress so far and the promise that I’ll continue learning routes if they put me on the list and while I wait will be enough for them. If I get a flat out “no we don’t think it’s right for you”, I’m told I can appeal if I feel I have grounds to appeal on. My Guide Dogs gurus, who I go to for all guide dog related advice, have said I would have grounds to appeal on if it was a direct no. This is reassuring because I don’t intend to take no for an answer.

Now for today’s session. As usual, Jenny arrived at 9:30 for our walk. With the Trek all ready to go, we set off. To begin with, I didn’t feel like I was doing a very good job at recalling the route. But as we got into it, things seemed to improve. The Trek wasn’t doing a great job at following the route I’d recorded on my Breeze so I cancelled it and walked without it, with Jenny assisting wherever necessary. We completed the slight adjustment we’d made to the route, crossing a road instead of walking along the path that has a huge drop to the left. It felt a lot better not even having to be wary of the drop and the crossing isn’t a difficult one at all. The rest of the route went relatively well. I noticed that the landmarks that had been copied from the Breeze to the Trek weren’t particularly useful. They weren’t being announced in the correct positions. Eventually, I decided I would just re-record the route and all the landmarks fresh so that it was more useful.

We stopped at Coffee Mac’s for our usual break. Jenny had her coffee and i had apple juice with a slice of banana cake. It wasn’t really a reward for anything – I just fancied a slice after how delicious it had been last time. Plus, I figured why not. If I have to say it was a treat, it was a treat for the good news about the further assessment. Again, the cake was lovely and I enjoyed the apple juice much more than I would have a hot chocolate. Afterwards, we popped into say hello to Dad. Then, we headed home, starting to re-record the reverse route from Coffee Mac’s. I noticed that some of the old landmarks were appearing but not consistently. I felt much more comfortable re-recording them and decided I’d start deleting some of the old landmarks later on. I felt that the reverse route went quite well and i was remembering much more of it. Jenny seemed pretty positive about how things were progressing, too, which was nice because its always good to have her support and know how things are looking from another perspective.

We’ve agreed to meet next Friday for our next session. I’m hoping that once we’ve re-recorded the route on the Trek, I’ll really be getting the hang of the route and maybe be getting to a point where I can do it without any input from Jenny, therefore independently. I’m also hoping that Dad and I will be able to go out next Wednesday and continue learning the route to my sister’s school. I’m hoping to pick it up quickly and then merge it into learning the route to my grandparents house. I think both will be amazingly useful routes, not only for their length but for the fact that I already go to my grandparents once a week on Wednesdays for tea, opening up an excellent opportunity to walk there independently. As for my sister, well shes only in her second year at that school so I still have plenty of time to use that route legitimately. To be fair, though, its just a good place to be able to walk to, especially as it extends to my grandparents house.

Overall, I think our 10th session went pretty well considering I’ve been away for two weeks and the new addition of the Trek and the little complications that brought. I think next week will be even better and I have a lot to look forward to with the upcoming further assessment with Guide Dogs. All I have to do is try not to get too nervous and worried by the day because I know what I’m like… I’ll be imagining all the worst outcomes and then on the day just constantly be thinking that its going to be a bad outcome when there’s a good chance it’ll be a good one. Keeping everything crossed that I’ll get my dream answer of being put on the waiting list. All I can do to get that answer is try my best. Try, I will.

Mobility Update: My Guide Session 9

As promised, Jenny arrived at mine yesterday morning at our agreed time of 9:30 so that we could have our 9th My Guide session. although we usually stick to our once weekly session on a Thursday morning, this week that wouldn’t have been possible as I’m flying up to Newcastle to stay with Kieran and family for a fortnight from tonight onwards. kindly, Jenny offered to rearrange what would have otherwise been a missed session into happening two days earlier. that way, I only miss one session while I’m away.

I’m really grateful that Jenny did offer this as we had a great session – at least, we did after I got myself together! I almost left the house without my Trekker Breeze and once I’d quickly grabbed that, I almost walked away down the path without locking up the house… Safe to say those weren’t the brightest five minutes of my day! But once everything was done, we were on our way and things were going well. I remembered a lot of the first part of the route, getting from my house down onto the shore, a lot better than I have in previous weeks. I remembered where to turn, where to cross and mostly which direction I should be walking in. Once walking along the shore path, it becomes simple for quite a stretch: walk straight forward. Literally, that is all you have to do for quite a while. Next time I walk it, I’m going to time the part that is just a straight path. It makes up about 70% of the walk though. After the really long straight stretch, we then had Jenny’s least favourite part of the route: the little bit where on my left hand side there is about a two foot drop… Jenny worries that my cane might not find the edge before my feet do and to be fair it’s not totally impossible, especially with the angles I usually walk towards it. I’m not too fazed; I haven’t fallen off it and broken both my ankles yet. Although if I did slip off the edge, I’m sure that would be the painful result. After we’ve passed that little worrying patch, we’re onto crossing roads and actually getting into the shopping highstreet of Woolston. It doesn’t take a lot but there are a couple of busy crossings where I have to concentrate and be patient a lot. After that, it’s just the straight path of the highstreet and walking until I find the obstacle of Coffee Mac’s outdoor seating. It’s a good landmark, actually, to tell me I’ve reached our destination. On the way to that, though, today I walked into some scaffolding. There’s work being done to one of the shops near Coffee Mac’s so its unavoidable. Jenny had to guide me around it as one of the poles was diagonal and there was no way for my cane to find it before my face. A hazard of being a blind person I suppose. In Coffee Mac’s, because it was just so cold and because I felt things were going really well, I decided to branch out on my usual apple juice and accessorise it with a slice of banana loaf, my favourite type of cake. Plus, its got bananas in it, hasn’t it? Surely that makes it a little healthier! Right there I felt so cold that I didn’t care. I wanted cake so I was having cake. It was a good decision. The banana loaf was super tasty. They put nuts, I think walnut, in their recipe which adds a little extra flavour and texture to the cake. Usually, banana loaf is quite moist and a bit sloppy. The nuts added a bit of crunch and solidity to it. They were definitely a good addition to the banana loaf I’m used to. The slice was pretty generous, too, but I couldn’t help scoffing the lot. It was just so nice! I’m just a sucker for anything sweet.

The return journey went well. Jenny didn’t have to steer me around the scaffolding on the way back because my cane hit an upright pole so I was able to swerve out towards the curb to avoid it. The rest of the walk went well. I felt I mostly remembered turnings/crossings/the general direction well. There’s definitely improvement each week even if it is only gradual. Any is good. Route learning isn’t simple for me. I wish my brain could just remember a route after a couple of tries like some people I know. But it just doesn’t have the capability. A few years ago, I’d have said it was me being stubborn. I hated using my cane. Still do. But now I want to learn routes. I want to be able to get out and about to differing destinations so that I have a valid workload for a dog. Plus, its always better the more places you know to get to independently.

As we walked back towards Jenny’s least favourite part of the route, the ankle breaking drop, she had an idea to alter the route a little to make it safer. Instead of walking towards the drop. I go in a different direction and cross a road. This means I completely avoid the drop part altogether. One more crossing on a route where there are few doesn’t make much difference. The last section of the route went fine; the long straight stretch along the shore and then the few road crossings to my house. Most of the crossings and turnings at this point I remembered well too. When we reached my front gate, Jenny and I agreed to meet in two weeks from this Thursday once I’m home from Newcastle. I’m hopeful that although its in two weeks time, I’ll still remember most of the route quite well. We’ve been learning it a few weeks now so it shouldn’t all be lost on me. As of yet, I haven’t heard a whisper from Guide Dogs about the case review meeting. There’s of course the strong possibility that it hasn’t even happened yet. Hopefully, I’ll have heard something really soon. Things are going so well route learning that I’m hopeful the good news will continue from Guide Dogs too. But who knows? All I know is that I’m off to Newcastle for two weeks and don’t intend to think about routes for a second while I’m away.

Mobility Update: My Guide Session 8

Since writing only 2 days ago, I’ve had some exciting news! As I said last time, Jenny contacted the leader of Southampton’s My Guide service to inquire whether the route we’re currently doing and the ones I plan to learn in the future would make me eligible for a guide dog. Ever since I very first applied for a guide dog all those years ago in 2011, their response has been that I don’t have enough routes and don’t go out enough independently to make up a workload for a dog. When I was a naive 14 year old, I thought this was ridiculous! I went to school every day, didn’t I? I could walk to the bus-stop and corner shop, too, if I wanted. And I’d even learnt how to get to my Nan and Grandad’s, then living in Woolston themselves, via a bus journey and some walking. Why on earth would they say I didn’t have enough routes or a big enough workload? I’d spent my whole six-week school summer holiday working with a mobility officer from Southampton’s sensory services, aided by a member of the Guide Dogs team. How could they say these things? In comparison, now I can see I was the ridiculous one. Yes, I did try really hard that summer and honestly, at the time, that was massive progress for me, a kid who didn’t leave the house unless I was attached to a parent. But it wasn’t nearly enough. I’m still yet to learn what is, but I’m much better prepared now, much closer to that target than I’ve ever been before. Anyway, the exciting news… so the leader of My Guide replied to Jenny’s request properly yesterday, to both of us. When a text message came through from her, I thought maybe it was just a little checkup on how Jenny and I are getting on. But she doesn’t need to check up. Jenny has given her full details on how we’re doing, my progress and my ambitions. She passed Jenny’s message onto several members of staff at Southampton’s Guide Dogs team, including the GDMI who assessed and crushed my world in October. They’ve agreed to take my case to the case review sometime next week to see if they can take my application for a guide dog forward. I couldn’t have hoped for anything anywhere near this good so soon into my work with the My Guide service. I predicted that perhaps I’d ask the leader of My Guide for some kind of review around my birthday or something. Not get one 8 weeks after I started working with Jenny. The case review meeting will take place sometime next week according to the leader of My Guide’s text. That’s really exciting! There could be plenty of outcomes of the review, but the main two options I think are either they’ll say I’m doing well but not yet far enough for them to be able to reconsider my application for a dog, or, they’ll say yes, I’ve done really well and they can reconsider my application now. If they reconsider my application and plan to move it forward, I’m guessing that means that they’ll consider putting me on the waiting list for a dog. But I could be wrong. Both my guide dog know-alls, Imi and Tiny, have both seemed quite positive about the text messages and the possible outcomes I could get. Imi, in fact, said she hopes I’m being positive now. I am. As soon as the My Guide leader text, i was imagining having a Guide Dog, being put on the list, having the yes answer… but perhaps I’ve got it all wrong. I guess I’ll find out next week.

As for today, Jenny had our 8th My Guide session, doing the new route for the third time, the second time me trying to learn it. I felt, considering everything, that it went really well. I feel like I’m picking it up really well to say its only the second proper time I’ve walked it myself. Jenny and I agreed that she’d have as little input as possible, just let me get on with it and only telling me if I’d gone the wrong way. Mostly I did well. Jenny only had to correct me a couple of times. It took about an hour to get there. As always, we stopped off in Coffee Mac’s for our little break, me having my apple juice and Jenny her coffee. She’s started asking me to see if I can locate a table once we’re in the shop and its quite easy to find the one we always sit at. As long as every time I go in there its free ‘ll be ok… we popped into see Dad quickly afterward. That entails me crossing the road and walking along to Dad’s shop. He was ok and we didn’t stay long.

The return journey went just as well, with Jenny correcting me whenever necessary. It felt longer walking on the way home but according to Jenny’s watch it was actually shorter. I know I felt more tired when I reached my front door than I did on arriving at Coffee Mac’s. it shows just how lucky I am to have been matched with such a good volunteer that Jenny offered to meet me next Tuesday to do our ninth session. I’m flying up to Kieran’s next Wednesday so will be away for our usual Thursday session. I really didn’t expect Jenny to say she could meet me on an alternative day but feel really grateful that she is. Hopefully, we can continue the good run we’re on with learning this route. Also, hopefully next week I’ll have news from Guide Dogs. But whatever the outcome, I’m just going to carry on. Of course, if they do say i haven’t done enough yet and need to carry on learning, I’ll be a bit disappointed that it isn’t a straight away yes answer. But my plan was to learn routes until at least May so if they ask me to carry on I haven’t lost anything. If its a yes answer, I’m so much more lucky than I thought I was. Maybe by the next time I write my next My Guide update, I’ll have the outcome.